Hi Steemians, first of all, sorry for my mumble-jumble English for this post as I am not in a good state of mind. However, I figure I should update a little in case I was unresponsive to comments or slow to reply. At the same time, my worry has caused me to stay awake to watch his breathing rate, it is getting faster and faster.

---

So my husband and I had successfully kept Jansen clean for the past 3 years and 9 months from infection. Yay! When he was a baby, we were told he must not get any sickness because of his hypoplastic right lung. He is a right CDH boy so he has severe underdeveloped right lung. Therefore, we were informed that any respiratory disease could have landed him in ICU again.

With alot of ICU phobia and death-threatening fear, we arranged our life to be not ideal at all, so that Jansen would stay at home most of the time, just to ensure he was well-protected from any infection.

Recently his social development is kicking in and we figure we need to let him have some normal life too. To realise the world is made up of different types of people and of different faces. After all, he deserves to know how does a mall looks like, what is an escalator, how much fun he could have at the playground, so on and so forth. Sanitizer, disinfectant and wet wipes are our great companion wherever we go.

However, no matter how hard we try, as a matter of fact, germs are everywhere. And unfortunately he got it last Tuesday. It started with minor cough due to tonsilitis, but today the bacteria has entered his lungs due to his lungs' incapability to expel them.

We are at hospital now with him diagnosed with chest infection which doctors suspect is pneumonia. This is the day we wish it will never happen. Since Tuesday, I feared of this day. I wished it never come. But today, I reluctantly accept the fact that his lungs are still weak (as of now) and he needs medical intervention.

We rushed to ER because his oxygenation (or saturation) drops from 99 to 87. Immediately at ER he was hooked on to nebulizer as his lungs sounded croacky (well, I am not sure why were there frogs in there but that was how the doctor described the sound of his lungs). Then without hesitation, we were asked to be admitted.

Was put on nebulizer straight away to get rid of 'frog sound' in his lungs.

IV line (in lay man term) is in. Doctors called it cannula. In my Malay language it is 'branula'. In my brain it is dracula.. Well thin sharp tube is inserted to the blood vein..I hope you know what I mean.

Then, suction to take out his phlegm. Oh yes, thin suction tube was inserted into both nostrils and also mouth right into the chest to suck up all the phlegm. Bad news, he needs to be suctioned every 4 hourly even when he is sleeping later.

All the above are meant to help him. But all I heard was my crying boy. But I have to purposefully harden my heart so that I can be toughen up. Emotion and feeling cannot have their drama now.

At the Emergency Room (ER)

This was how he looked like after all the crying and yelling.

Intravenous (IV) cannula at right hand and nasal cannula at nose to provide him oxygen.

Totally exhausted

Feeding fever medicine

Trying to assure him that everything will be alright.

Have some time for family photo while waiting for ward.

At the pediatric ward

Feeding him milk in the dark while everyone else is sleeping.

---

We hope everything will be cleared soon and we can go home to our home sweet home. Bless all the other 3 babies in the same ward - all are coughing badly, needing to be put on nebulizer and to be suctioned every 4 hourly. This ward is nothing short of crying sound and songs from mummies to console the babies and a child.

Thank you once again for reading my mumble-jumble. I hope to be back to my normal self soon to write out my heart's content for the readers here.

Till then, take care everyone & my regards to you.

_{Who am I? I am a mother of 2 sons (2nd one is battling CDH). I used to serve actively as a pastor and worship leader at my local church, but now I fully focus on taking care of my 2nd son and of course home and family. I love life and want to live my life with love. Why am I here? All the while I love blogging. So here, I can blog and share, at the same time earn some income to support medical needs for my CDH son. What do I blog about? I blog about life, family and practically anything under the sun that inspires me daily. I start to realise I love photography and freewriting. Most importantly, I want to have fun here blogging and connecting with people without stress. And do it with love and passion ❤😘}

---

Join us @steemitbloggers
_{Animation By @zord189}