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I am so sorry to hear about your little princess. She looks beautiful. I hope there is a way to give her the great life she deserves.

💕 and☘for all of you.

Thank you so much wakeupkitty, I wish I can see the day that she lives a normal life, her expenses are off the roof but we still try to give her the most comfortable life she ever live.

Above all you love her and that is the most special gift you can give her.

Are their (worldwide) groups or an organization/funds that can give a hand?

If you use paypal I would announce that address as well.

If you like you can freewrite, use the daily prompt so more people notice your messages and this great girl 💕

Not that I am aware of, Ohtahara syndrome is a very rare condition, so it is very understandble it doesn't get much attention as it should.

I just found them via Google and there are in the Netherlands. Frequently together with organisations about epilepsy. I just googled for the syndrome.

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Fuck you Justin, we're moving to Hive.

I can imagine how it feels. I will.write and share and hope people respond and someone out there turns out to be a big help.
💕☘

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Thank you so much wakeupkitty! You are all good people and I hope everything you're doing to help me comes back to you a hundredfold:)

I will try and update as often as I can but please understand that I have to be hands on with my princess and that I barely have time for my own so it wouldn't be as often as I would like to. Sadly my Paypal account has been frozen a few months ago for some crappy reasons. I posted my BTC and LTC addresses if anyone wants other crypto addresses let me know, I have a Binance account.

Just see if you can write once a week or so.

💕 and ☘for you and the princess

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Hi and welcome here! When I started on steemit, my biggest problem was to find interesting people to interact with. So, to help newcomers getting started I created a directory with other interesting and or talented steemians to follow or interact with. Feel free to check it out at https://www.steemiandir.com I am sure it will help you find like-minded people. Enjoy your stay here and do not hesitate to contact me if you have any questions!

I wish your baby the best. Praying

Prayer is a very powerful weapon. Thank you vaan :)

Congratulations @inahthewarrior! You have completed the following achievement on the Steem blockchain and have been rewarded with new badge(s) :

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Welcome to Steem inahthewarrior! Partiko is officially the fastest and most popular mobile app for Steem. Unlike other Steem apps, we take 0% cut of your earnings! You can also be rewarded with Partiko Points while using Partiko and exchange Partiko Points for upvotes!

Partiko for Android can be downloaded here on Google Play and the iOS version is available here on the App Store.

If you have more questions, feel free to join our Discord channel and ask @crypto.talk, we're always here to help!

Thank you so much for your interest!

So sorry about your little princess' illness :( Keep fighting you little warrior! Maybe you should post a bitcoin and litecoin etc addresses and let's hope some kind sould donate some for her medication. Don't give up!

thank you for the kind words. sorry i am new to this. here is my bitcoin wallet address 18o2BS8jNaradXVNWof5it3isTvDZUM5rH and here is my litecoin wallet address LNBx4fSek1VdvT6HJd95tnbNKy91TyCU8P thank you in advace.


Welcome to Steemit @inahthewarrior!

I wish you much success and hope you find Steemit to be as rewarding and informative as I have.

Here are some links you might find useful.
Your stats on SteemNow
Your stats on SteemWorld
Your stats on SteemD
How does Steemit actually work?

Oh yea, I have upvoted you and followed you. Many blessings!

@frankcapital DONATING 5SP to @inahthewarrior

Together let's change the world.

@frankcapital
Partiko Partner

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Thank you so much sir :) I appreciate every help I get and I hope it comes back to you a hundredfold :)

Welcome to Steem.

I do hope that you have a good time here and meet interesting people.

I’m on here looking for people interested in film and filmmaking, but also to raise funds to make my own projects.

I’m hoping that I can convince you to download and use the Partiko App for iPhone using my referral code. If you do you can earn points to redeem for upvotes. Plus... I get a bonus to my points so I can reach my goals faster.

Thank-you for any help you can provide.

https://partiko.app/referral/andrewgenaille

Congratulations on having the baby; I know things look hard now but they do get better.

Posted using Partiko iOS

Hello @inahthewarrior, welcome to the steemit platform. Hopefully you will grow and reach what you want here. Greetings from me @anroja, if there are questions please contact me. Don't hesitate to follow me.

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