A brief look at my Essential Tremor in action for Rare Disease Day, February 28 2019
Just a quick post to boost the signal - next month (March) is Essential Tremor Awareness Month, but today is #RareDiseaseDay.
While I haven't blogged about my condition recently, I live with it every day. So does my family. The severity of my tremor ebbs & flows, but the support, particularly from my hubby, is as steady as a rock.
This video was taken by him last May, a short time before I got my diagnosis. It's actually the second take, because he stopped recording the first time when I started talking. Silly man thought I was talking to him so he stopped recording the first time - like I could make it through the whole video with saying a word! You'd think, after 32 years together, he'd know better!
I can no longer drive, and my tremor has progressed to the point that when it's triggered, my diaphragm spasms so much that I can't speak, only stutter. However, I'm incredibly lucky that I'm able to do things (a story for another post) to help control/calm things down when I really start to rock 'n roll.
On the plus side, though - I've dropped a bit of weight since then (most of it was gained because of medication I was on). You'd think that, being such a mover & shaker, that I'd be a size 2 by now!
For more information -
https://rarediseases.org/rare-diseases/essential-tremor/
https://rarediseases.org/rare-disease-day/
#share2steem #powerhousecreatives #NORD #EssentialTremor @RareDiseases #ShowYourStripes #ShowYourRare #EssentialTremorFoundation #Tremor2019 #RareDiseaseDay2019
Thanks for stopping by!
My posts may occasionally contain affiliate links. If you click through,
I might get a wicked small commission, with no extra cost to you.
Blog graphics created on Canva
My photographs are taken with my trusty Nikon,
sometimes utilizing my handy dandy tripod.
All words and images are mine (unless otherwise indicated),
and can sometimes also be found on my various social media sites.
Speaking of witch which...
I have one billion many homes on the interwebz.
Here are a few...
- Smoke Blog - Traci York
- Steemit Blog - Traci York
- WordPress Blog - Traci York
- Facebook - Traci Cavanaugh York
- Facebook Page - Traci York, Writer
- Instagram - traciyork_aka_internetg33k
- Pinterest - Traci York, Writer
- Twitter - @TraciYorkWriter
- My Weku Blog - Traci York
- YouTube - InternetGeek
- Ello - @traciyork
On the Steemit blogging site,
I am a proud member
of these awesomesauce communities
Links: @PowerHouseCreatives; @steemsugars; @steemusa;
@anonyvoter/steemians directory; @helpie
via GIPHY
hugs!
am glad you have a loving hubby by your side, Traci
i love that you still can have a little humor of your condition
<3
Thanks so much, @thekitchenfairy! It's the humor that helps get us through the craziness of all this. And hugs right back atcha! 😊 🤗 ❤️
Well, it's cool that you can approach everything with humor. Otherwise it would be quite difficult.
Thank you for putting this out there to make us all a little more aware! I ❤ you wicked hard. Your husband sounds like he's got a good sense of humor, and even better that he is such a good partner!
Hi traciyork !
After approximatively 48 hours, your post has 1.285 of pending rewards.
To compensate the fact that @share2steem is taking a fee on your posts, please allow us to upvote you via @tipu.
Our fee : 0.129
Value of votes you got from S2S trails : 0.033
Value to compensate : 0.048 (this amount has been lowered by 50% as you're not in any S2S Curation Trail)
Join both Curation Trails on the website (in Settings) to be compensated 100% on your future posts.
!tipuvote 0.048
For the latest news about the Share2Steem application, visit our @share2steem profile.
See you soon on https://share2steem.io
This message is generated automatically.
This post is supported by $0.06 @tipU upvote funded by @share2steem :)
@tipU voting service guide | For investors.
I read this on Saturday and wanted to comment then, but as you know, life gets the better of us sometimes. I can't believe it's a year since you were diagnosed - I do remember. Anyhow, I admire your fortitude and bravery sharing this video. I am sorry to hear that the condition has progressed. The Husband asked how you manage to type and I said that I'm sure you just do!
We both send our good wishes :D
!tip
Congratulations! Your @share2steem post has been featured in our weekly curation showcase which you can check out at the link below!
Keep up the AWESOME posts!!
https://steemit.com/steemtweets/@jaynie/jaynie-1551904680686-the-official-share2steem-curation-showcase---no-8
Love your positive vibe AND your gif!!
Firstly, big big big hug. Really, I want to give you a big hug so desperately.
You have just shown me what courage is. To see the beauty in the midst of challenges. And you are rocking it. I know it is not easy, but you are painting it with humour still.
And happy also for your supportive husband. You are one of the best, @traciyork. I am not aware of this until now. Sending all positive vibes to you.