Why is @gmuxx so chirpy all the time.. I just found out and it's both inspiring and moving !
It's only Monday but this post by @gmuxx is post of the week (link below post)..
..and one that I found myself quite surprised by. I wondered what's different about this pragmatic steemian and now it's clear to me that his secret is that he has found a way to overcome adversity of suffering with MS in a way many people never discover. (my Mum suffers with a mild form of MS and my cousin has it quite bad so it stood out for me). They are both incredibly productive people and very talented designers. They are also both inspirational in their own ways. I have also had my own health crisis this year and just getting back on track after nine months
Here's a bit of info about my Mum
The Best Puppet Costume Designer in the World and all round talented dress designer
Pepe was a regular visitor to our house. He is a string puppet who can not only ride a bike but can operate a string puppet. Just think about that for a minute.
Here's my cousin Rebecca's Jewelry shop on folksy
Rebecca Waterhouse Designer
My friend Paul Hardaker
is a long term Crohns disease sufferer ( my Stepdad is too) and Paul is also a professional adventurer. Although he suffers a lot, he made a commitment to show the world that you can do anything. He sailed single handed around the UK. that's more difficult than it sounds. He's also travelled the entire length of the Leeds to Liverpool canal (passing my mum's house) in his kayak, gone coast to coast & back again across Spain on his motorbike and travelled to the Arctic circle from our hometown of Liverpool. ( in 4 days flat) .. all in aid of crohns and colitis UK. He was also a torch bearer for the London Olympics.
HERE'S AN OLD POST about PAUL and a link to his website
My other friend Guido Gazzi is about to embark on a trip nobody has done before. Ultrahiking 4000km around Spain, this winter, with a snowboard. no transport whatsoever. He's had some dark times (like most of us) and found a new lease of life, living in the mountains of Poland, teaching people to speak english and snowboarding. He will be raising money for UNICEF. I think he will inspire many people with the film he is making.
Here's a link to Guido's Just Giving page and more info about his audacious adventure
The thing that drew me to the @gmuxx post
is that I found steemit earlier this year when I was flat on my back in bed for months with a mystery illness. I am just in recovery now and it's been a complicated year. I'm not sure I'll ever be the same again or be able to do what I used to. I was very active and now the mildest of exertion can leave me drained but I have drawn strength from others, their stories and the inspirational people above.. including the @gmuxx
During this time,
I learned all about BlockChain, crypto in general and also all about steemit. I had an interest in the BlockChain revolution but I wouldn't have found time to explore it if I hadn't got really sick. I mean, like rushed to hospital a couple of times, sick. I found Steemit via a post in a crytpo forum, completely randomly and it gave me a voice, something to focus on and stop my brain from turning to mush in my time of isolation. I had quite bad brain fog. Friends did just disappear. Not really a shock but when you're struggling, but you find out who you can really depend on. Like @gmuxx, I also have 2 amazing daughters and although they are both tiny people, their company & smiles are enough to perk me up. They are all the motivation I need to make the best of the health I have on any given day. I have missed out a lot this year, especially in playing and playing out with them and I have saved every ounce of energy for them. We also have a great relationship which is perhaps closer, because I've been at home a lot of the time. I do what I can. I can still put together a great family meal each evening and I am now back at work, albeit at a much lower pace. I work for myself running a small animation company. Pixels don't just knit themselves so it's been a challenge ! and I have recently found what I hope is the subject of my next film project. An amazing tale of riches to rags redemption and a steemit story !
People think chronic fatigue
is just being lazy. it's incredibly debilitating. I had an underlying viral infection which also leads to depression. I had some pretty dark times but having family around you is the best medicine.. and my wife as the best support anyone could wish for. she really has stepped up to and right past the mark. She deserves a medal.
Thanks for sharing your story @gmuxx. you've just taken on slightly heroic qualities for me and I am inspired.
Wonderful post. It's so uplifting to read stories of people who by all rights could have just stayed in bed and suffered, but instead went out and lived their dreams.
Thank you for sharing!
thank @lenadr. I find all these people inspiring. I also have a list of other people equally inspiring. some of whom have had to endure challenges and obstacles, most people simply haven't ever experienced. humans are capable of amazing things.. part of my attraction to steemit is the strength of character of it's inhabitants, the ability to share and everyone to feel confident within what is essentially an open community ! Long live the steemboat :)
Wow, thank you for this and for sharing your family's situation.
Chronic fatigue is one of the worse things for people to understand.
Family is everything and with them behind you, supporting and pushing, nothing much is beyond your reach.
Thank you again.
One of many invisible illnesses often attributed to mental issues. It isn't easy when everyone tries to decide you're just crazy.
true @bex-dk. I spoke to one Doctor who said five years ago we would have said it's all in your head.. I replied, what ? and the white blood cell count too !
I've got fibro on my list--although I've been told by two rheumatoligsts it's BECAUSE of my hypermobility--so I've hit a lot of that. In the medical field, not just "regular" people. Especially in the government when they didn't want to give me my pension. Good on you for speaking out in public! It takes bravery, just like it does for Muxx.
fibro is a silent problem. Apparently being hyper can lead to all kinds of problems too. I think we live in a world which is too toxic for our sensitive systems. I guess in a hundred years they'll look back and pity us for living in such a toxic environment. If you add up air pollution, diesel particulates, brake linings, power station emissions, water treatment chemicals, food additives (and chemical fertilisers, pesticides,) did I mention nuclear ? massively misunderstood. then we have electromagnetic pollution, the chemicals in the products we wash ourselves, our clothes, our homes and eating utensils. then the additives in medicines. it's no wonder our society is getting sicker every generation. we have to make positive choices and deal with what we have. it's really difficult and we can't afford to get bogged down in what's wrong all the time. we have to live our lives while we can and that was the original inspiration for this post !! thanks to the G
my pleasure @gmuxx. inspiration is a two way road ! and your story resonated with me. I felt it was apt to share some of the inspiration from my world. you're right, family are incredible support. I hope your post and mine reach many people who will take something positive from them.
This is a wonderful post about dealing with adversity and challenging health problems, and rising above them. It would be much easier to allow self pity and depression to take over, but you have instead (like @gmuxx) found a way to use your challenges creatively. I wish you the best in your healing journey!
thanks @jayna. I'm a half full cup type of person and I've always had the belief that some of our most important lessons and opportunity for growth come from adversity. It's not always easy to see at the time. Partly what inspired me about @gmuxx's post was the retrospective clarity. When life gives you lemons you don't always need to make lemonade, lemons are much more versatile than that !!
I love it. That wisdom is so good, and I agree that adversity is a gift in its own weird way. Not that we would choose it. But those of us who work through it can often find a way to see challenges through a new lens and feel appreciation for becoming a tougher person, and perhaps a more compassionate one. These are the things that fuel me, as a writer.
Such a very nice post dear @outerground. thanks for sharing and better luck for next.
thanks @akandadelwar !
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