I really feel sad every time I read your story. In this life hope is all we have and even though hope is frail it is hard to kill. Keep holding on and fighting, you are so brave. I was reading the story of an Indian guy with a condition like yours but he underwent successful facial surgery. Here is the link https://www.standardmedia.co.ke/ureport/article/2001299145/lion-faced-man-transformed-as-surgeons-rebuild-his-face