Thank you genuinely for your kind thoughts @oleg326756 and my apologies for not responding to you sooner. In fact, just saying that you care and sympathise is actually help in itself and I feel it shows an understanding of the situation to not attempt to throw cheap words together that you'd typically see in the Hallmark Card style superficial response so thank you for that also.

Our genuine thanks for your support and interest! Perhaps the only thing that would be of benefit is awareness. I can't help but think that the more suffers are drawn together to share what works and what doesn't work, or even just to hear that they are not alone, the more the chance for a little reprieve in an otherwise difficult life.