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RE: TOP 10 WORST SYMPTOMS OF LYME DISEASE
this sucks, I have all those symptoms! the chronic fatigue, joint and muscle pain, and the migraine/cluster headaches are the worst! I miss out on most of my life when I am bedridden for days at a time...
I am sorry to hear that you are experiencing so many symptoms. Have you been tested for Lyme?
hi,
Yes (a few times, a few years apart), however, I have never had a positive result for Lyme. Yet.
I have been diagnosed with degenerative disc disease, post-traumatic osteoarthritis, and fibromyalgia. I have been tested for numerous inflammatory disorders, and other things, but with no luck for any cause or relief to my persistent misery.
About 10 years ago, I had a minor spinal cord injury that left me with many of the same types of (or similar) symptoms that you listed in the post, and they are progressively getting worse. on top of that, I have really bad G.I. issues, acid reflux, tremors in my hands, and floaters in my eyes.
And to make things really complicated for my docs to figure out my problems, I previously had a tick removed that had burrowed under my skin for a few days, I also had bad poison ivy at the time so I didn't notice the possible rash from the tick bite. This was a couple of years before the neck/back accident I mentioned above, and while I was a landscaper in upstate New York, so... anyway, my health care sucks, and i'm told to just deal with it...
I hope you are doing well today.
My heart went to you went I read that you got the whole ordeal. Many people get misdiagnosed for decades just to find out they were actually having Lyme.
As a landscaper, you were more exposed to ticks than others. Did you have that tick checked to see if it was infested? But then, again, the reliability of the tests for Lyme is another issue...
Getting a positive result may be like the winning the lottery. There are over 300 strains of Borrelia worldwide, but the labs test for even less than a quarter of them. Igenex Labs in Palo Alto, California are having the best Lyme labs.
Maybe Lyme literate specialist would be able to help you.
Hi,
Thank you for replying,
No, I don't think they checked the tick for anything, or I didn't receive any notice of it, this happened about 12 to 15 yrs ago.
I have been on and off of all sorts of meds and antibiotics trying to chase down different symptoms. Sometimes they work, mostly they don't, or they just make things worse.
I get tested for Lyme disease every so often because I've heard it's hard to get a positive result unless you catch it at the right time, like when it flares up or something. I am also trying to get tested for "Gadolinium poisoning" (which I just heard about); it has similar symptoms to Lyme disease, and I might have received that from the contrast dye that was used during some of my numerous MRIs over the past decade because of my neck/back injury.
I wish it were easier to find a good doctor; I am limited by my crappy insurance, and also location/transportation. I cannot even exercise regularly to stay fit because I can re-injure my muscles and joints so easily all the time, and the fatigue and exhaustion I get from doing basic household chores doesn't really help motivate me... This sucks beyond belief.
I just try to keep positive though, and hope medical technology advances quickly enough to help soon. On the bright side, I love where I live; I have a couple of new hobbies I am interested in, and Steemit to keep me company.
Thank you for posting this, and getting more information out to others about this "invisible" disability that so many people have to deal with.
10-12 years ago I imagine they would have not checked the tick for Lyme. Feel free to contact me on discord, I have the same user name.