I agree with you that cures are most likely pushed under the rug. For example the genome project of a decade or so ago. If I remember right, they'd found the gene for breast cancer and if they can do that it seems switching it on and off is an option. Might be hearsay, but I also heard that pharm bought certain genes and then there are all of the moral questions, such as finding the "gay," gene and whether or not parents opposed to having a gay child would pay to have the gene switched?
Sorry you've lost so many to this insidious disease. Like you, I hope I never have to face the treatments or long suffering.