I know a lady with that condition. I didn't realise it was so bad. Thank you for this post.
Well done for losing weight! I find people just decide things about you with no basis when you talk on the web. Eg, a guy I chat with decided I am a biker chic because I said I'd had a bad time a few years back. He was so wrong! I had a stroke! There's no point in correcting them so I just let them think what they want.