Disabilities discussion "I would shoot myself if..." Don't say stuff like that!!!!

in #ptsd7 years ago

I was invited to an open mic last night.  It was all people with various abilities.  Some sang, some read thoughts, some wrote poetry some just shared their story.  I had just written about inappropriate things that are said to people with disabilities the night before.  https://steemit.com/ptsd/@creativeusername/you-look-fine-to-me-ptsd    The first one that was called up to the stage was a couple.  She had an invisible disability and her boyfriend had an obvious disability.  He had been in a really bad accident and lost the use of his legs.  He played a very small keyboard with sound effects and she played a Thermon.  It was quite an interesting set up.  He would play a few notes and chords and she would use the Thermon to match his sounds and pitches then they would stop and she would read a couple of lines of a piece he wrote.  What was so fascinating about it is that his written word was about inappropriate things that people have said to him.  There were about 3 or 4 things that I've had said to me and even a couple of things that were in my blog that I wrote about it.  https://steemit.com/ptsd/@creativeusername/you-look-fine-to-me-ptsd

I was in utter shock and disgust when one of the last things she read was about having a conversation with a stranger he'd met.  He had asked what had happened and he told him his story.  The man he was speaking with responded with "Man, if that happened to me I'd fucking shoot myself in the head.  I couldn't live like that".   All I can think of is  ARE YOU FUCKING KIDDING ME????    I've had people tell me that because I'm on disability that they wish they could be on constant vacation like me.  I've also had people, after telling them my story when they asked tell me that they didn't think they could handle that and they would probably kill themselves. I've also heard that I just need to get over it. Some people choose not to try to understand what it is before making a judgement.   We know our situations are not ideal.  We know it sucks to a certain extent.  

"WE" the people with both visible and invisible disabilities are getting through life the best we can.  Some of us are on fixed incomes and some are not.  Some have support systems and some do not.  For the ones of us who were not born and acquired some sort of disability at some point in our lives, we HAVE to start over in many ways.  Whether it's Bipolar Disorder or Schizophrenia, PTSD, Traumatic Brain Injury, Paralysis, Blindness, Deafness or loss of limbs.... there are thousands upon thousands of things I could list here... we have to rebuild our lives and roll with the punches of the hands that were dealt to us.  We don't need your pity and we definitely don't need insensitivity.   

PLEASE THINK BEFORE YOU COMMUNICATE 

Thank you for reading.  I've been on steemit for close to 2 months now.  My goal on here is to write about and raise awareness for those of us with invisible disabilities.  

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Great post.

Thanks for posting. The most recent response I got when someone found out I have bipolar disorder was, "Yikes." A drop in the bucket, but it hurt. There's so many assumptions and misinformation surrounding invisible illnesses, the more content like this the better.

I agree, we have to stick together :)

I hurt my back n I'm 28. I don't look disabled but I am. I also feel that because I'm over weight people think I'm lazy for resting after a short walk or I show sign of feel weak. It's hard. Because I park in the handicap and one older was talking about how young people just park anywhere they want to another person. I was always right to respect my elders so as she drove off I stuck my sticker out the car to show her how stupid she was.

It can be hard, as long as we stick together and we keep trying to raise awareness I think we will be in a better place. :)

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