Ahhhh man, sux you have to deal with this. Is this life long procedures or just for a little while? You got that guard pretty good. He has that look of "He knows that you know that he knows" you are on to him!
Ahhhh man, sux you have to deal with this. Is this life long procedures or just for a little while? You got that guard pretty good. He has that look of "He knows that you know that he knows" you are on to him!
There's no known cure for either one of the diseases that I have so my choices are either to take treatments that the doctors recommend (which are extremely expensive and risky) or try natural health remedies like totally revamping my diet to try and heal my gut. Some people believe that a leaky gut is related to causing autoimmune diseases. And a leaky gut can be caused by eating a variety of foods.
So unless there will be a major breakthrough with these diseases, these treatments will be necessary. This makes the 3rd type of treatment that I've been on since 2013. The first treatment was self injected shots that were horrible to administer every other day. The side effects were flu like symptoms that lasted for 24 hours, so if you took a shot every other day, you pretty much felt like shit all the time. These shots cost around 5,000 bucks a month.
After giving up on that treatment I switched to a more aggressive and powerful medication called Tysabri. This medication had a good track record of keeping the disease at bay and also helped boost energy which is HUGE for MS patients. The downside to this one is that it in increased my chances to developing PML, a deadly and nasty disease that can either kill you or turn you in to a vegetable. https://en.m.wikipedia.org/wiki/Progressive_multifocal_leukoencephalopathy
Just as soon as the Tysabri started helping me feel better, my chances for PML were rising rapidly and it was recommended that I should come off of it or continue to take extreme chances that would only continue to increase in a short amount of time. This was also the same time when my Progressive RA kicked me in the ass really, really hard. This medication was administered once a month at the hospital and cost 10k just for the bag of fluids, not counting the hospital bills for their troubles.
After giving up Tysabri for obvious reasons, I'm on my current infusion that is supposed to work on both autoimmune diseases at the same time, unfortunately it doesn't work wonders for either one. It has been keeping any new scars from forming on my brain and spinal cord so far but I still feel like hell all the time. The drug doesn't do much at all for my Progressive RA either. I still have to take other drugs and steroids just to function daily and that's not good. This is pretty much my last option as far as medical treatments goes. Hopefully something new and better will come out soon or better yet, a cure.
I've tried changing my diet to a Paleo type lifestyle and that was really difficult. Not so much as me changing the way I eat but that also meant that my wife has to change also and thats where the problem evolved. She works very long hours and trying to prepare every meal just right became too much for her unfortunately. We started off strong but fell off the wagon. We're in the process of trying to change again. It's a very difficult thing to commit a 100% to, especially when one person works all the time and the other feels like hell and has no energy. It's just something that needs to be done. I need to try and find the energy to go do the grocery shopping myself and help with preparing all the meals. That would help her out, which would in turn help the entire situation out. But finding the energy and not being in too much pain for me to take on this responsibility is a pretty big tall order.
And yeah, the guard knew something was up lol.
Geez man, I can't even imagine what it must be like. I hope there is a medical break through that can help you out in the near future. The MJ must help a bit but it can only do so much.