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Thanks, @chapper, for stopping by. I used a GIF to illustrate my point, but not a science GIF :)

No trouble about the non-science gif. The article is pretty cool again. At the first place, I was surprised to find a new disease I never heard before. But then a saw the term Usher. A friend of mine did research on the Usher syndrome and therefore I know these kinds of diseases are very rare. Because of this reason, unfortunately, not that much research is made and therefore again no good therapies are available.

But it's good that you received a therapy that worked immediately without all these horrible side-effects or long-lasting suffering.

Enjoy your Sunday

Best
Chapper

Hi Chapper, Thanks for finding my article 'cool'. 🙂 I don't really like to wax personal on Steemit, but this seemed to be a tangentially personal topic. It all worked out well mostly because of good fortune, but also because I had access to an internationally acknowledged specialist in pemphigus at NYU.
I'd never heard of Usher Syndrome, but looked it up. Apparently, this is a different Usher, Charles Usher. USFDA also characterizes Usher Syndrome as an orphan disease, as you indicate.
It took a little work to track down the Usher in Senear-Usher Syndrome. This is Barney David Usher. I'm sharing this with you because he has the unique distinction (!) of being the first Canadian dermatologist to have a disease named after him. This is the sort of trivia that might come in handy if you're ever a contestant on a TV quiz show 😁

I do appreciate your support, very, very much.

Have a great Sunday (which is probably almost over for you now) and a peaceful work week.
Warm regards,
AG

Haha, this is very interesting and yes it has the potential to be one of these game show trivia questions. When I win 1 Mio in a show like this you get rewarded!

Btw. I also try to prevent to get to personal here, but the people like it sometimes.

To support articles likes yours is my duty and honor at the same time.

Have a nice week

Chapper

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