RE: Dealing With SSDI: My Experience & The Waiting Game Continues
We can so relate to all you are going through. My husband and I both have good days and bad days. There's no way either of us could hold down a job as usually at least 2 days are spent each week recovering from whatever we did on the other days. Or from the weather (that really hits my husband hard), or just because the Lyme decided it would be a good day to act up.
As I was a stay at home mom, I didn't have the 40 consecutive months of employment, so they would not even talk to me. So I've never had disability income.
My husband applied over 5 years ago to the VA for disability benefits as he's in end stage liver disease. We finally got an appeal last Sept. They said due to his health, they would expedite the case. Nothing so far...
When he went out on SSDI in 1998, his case was approved immediately due to his health. It's never been reviewed, probably for the same reason. So his SSDI is what we live on, waiting for the VA to expedite the case...
I do hope you have better luck than we've had and hear relatively quickly.
OMGosh! That's terrible!
I have heard some real atrocious stories about the VA and their turn around time for approval, appointments, etc...but my goodness; that is just awful for you.
Lyme disease is a debiltating disease. I send you prayers.... like my disease... no cure. Only treatments to subside the symptoms. And like you and the Lyme disease... any given day could be good or bad. SO when I have a good day, I try to take advantage because tomorrow and the next day may be bad ones.
My husband always tells me (well,nags sometimes) when I am bouncing around doing chores until bedtime... and I tell him.. "it's a good day, let me do this cause tomorrow is another day."
Yup, sometimes my husband will tell me, "What are you trying to do, kill yourself?" because I am out working as hard as I can when I can. Those times are planned crashes and burns. It's usually right before a rainy day, when I can sleep all day.
Yes, your disease and mine have a lot of similar symptoms, but namely the exhaustion and never knowing minute to minute how you will be.
My treatment for the Lyme has been growing the very best, most highly nutritious food I can. Each year I am a tiny bit better than the year before. Some things, like the lost memory and neurological damage, will never improve. As you say, no cure.