How vile, it looks like there are still so many places where humane medical care needs to be put forward. I really do wish you luck in finding the answers, and hope it's not what you think. But if it goes down that route can your brother not help just like he did with your mother?
I don't really think about anything. I've had so many diagnoses, each one more "wonderful" than the last. I keep thinking about what a friend of mine told me about her mother: she went to doctors all over the country and everyone said they didn't know what was wrong with her. When they found her cancer, it was too late and she died a few weeks later. In my case, at least for the moment, it's not really about cancer, but about autoimmune diseases, which is even scarier because it's clear that there's no cure. But nothing is clear, of course.
I was expecting this logical question. But the thing is, I don't want to tell anyone about it, least of all my relatives. Only my partner (and you, who read my posts) know about my condition. It's just that my relationship with my relatives is too complicated to share such personal things with them.😁
I know the feeling a autoimmune disease might be what I'm dealing with, I'm no doctor but it seems for either there might be a bit of hope, likely depends how serious and type, however any help on such things are always said to be 25 years away. And I think that's mostly down to the terrible systems in place supposedly to protect us.
That's also the answer I expected "relationship with my relatives is too complicated". For the other part of the answer it seems these days people enjoy too much going around telling everybody, especially true with telling family what is effecting them health wise. But it seems we are both mostly keeping and trying to deal with it ourselves for the reason you mentioned.
Talking about it is desirable, of course, and sometimes one forgets oneself in one's grief and talks and talks, and of course this makes things worse. It has been said that one should not talk about one's problems, because it makes them worse. But God, how can one not talk? How can one keep all this inside oneself, and just suffer?
Luckily, I don't have people around me I can trust 😁 to not make things worse. I've chosen to write on Steemit. Because God, this has to come out.
And yes, of course there is some hope, especially when the diagnosis is not clear. I wish hope and good luck to both of us.🙏
I think that's the main distinction I wanted to make when I said that, there are a lot of reasons why talking about such things can be beneficial to oneself or others. However like you pointed out some of us have people around who cannot be trusted which in turn can make things worse, or like also in my case those who simply don't have the capacity to understand. To us both 🙏
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