A Heart Break of Fate - Original Song by Kodie Amos dedicated to my sister

in #medical7 years ago

A Heat Break of Fate. An original Song dedicated to my sister.

I'll leave out any pictures as they can be disturbing to some people But you can find them on the website below.

My sister Analeise was born with Arthrogryphosis, sever scoliosis and hyper kyphosis. She started spine surgery when she was just 6.

Over the past 5 years she has undergone numerous rod lengthenings and other spinal procedures.

She now requires definitive fusion to stop the curvature but this can not be done in the public system.

We have been told the surgery will cost approximately $100,000.00 but that the longer we wait, the worse her condition is becoming. Not only is her spine still twisting on itself, but it is also pushing her right rib cage around her body and her neck is slowly bending over, causing her to become a hunch back.

She suffers many many chest infections and is extremely tiny and fragile.

In order to maintain the current lung capacity and her current height, she needs her surgery ASAP but this kind of money is not something we have just sitting around and the hospital does not currently have a specialist to monitor her spinal activity and brain activity while her specialist performs the necessary operations.

Analeise is such a brave and strong little girl, and we really appreciate any help anyone can give us to get her the operation she needs.

She is the brightest and happiest child you will ever meet and she really does not deserve to be going through all that she goes through. No matter how much pain she is in, she will always have a smile and a kind word for everyone she meets.

Heres the site where you can find out more
https://www.brightnewsounds.com/analeise

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Very touching and sad post. I'm sorry about your sister. I hope you get the money for the operation as soon as possible.

Thank you so much
So do I

You are one amazing big brother. Your song really touched me and I am sorry for what your family is going through, but I believe in miracles and I'll be praying for Analeise miracle.
I resteemed @bulleth post and will help with what I can and you and your family and Analeise are in my prayers.
Wish you the best @kodieamos. Be strong and believe because with God all things are possible.

Just saw your update on Teamaustralia. I wish the best for your sister. I hope all goes well. God bless.

Calling @originalworks :)
img credz: pixabay.com
Nice, you got a 2.0% @peaceandlove upgoat, thanks to @kodieamos
Want a boost? Minnowbooster's got your back!

Very touching be strong the almighty will see her through!

You are awesome Kodie!
Prayers are on their way, I send my love and the love of my people.
God is with you and your family. Take care my brother.

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