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RE: What it's like to live with a RARE DISEASE that no one's ever heard of
Good post.. Your positive attitude is nice to see.. I have some health troubles also as do many people I imagine and often it feels like no one understands what I'm going through. Makes me feel quite fragile in some situations. Thanks for taking the time to describe your struggle, and good luck with the book and your blogging :)
Thanks. And you should write about it! Its really cathartic and it helps other people to feel less alone. Starting a blog about meniere's disease has been one of the most rewarding things I've ever done.