Living as spinal cord injuries patients

Living as spinal cord injuries patients Tetraplegia, also known as quadriplegia is not easy life.

After I become tetra, the world changed a lot to me and my family.
When you are at hospital, you won’t feel depress so much, because we stay together with so many kinds of patients. Some are worse than you and better than you. We are supporting each other and waiting for the discharge date. Many peoples are come and go. When friend of you are discharge, you feel happy and sad. And further more care from nurses, therapies and doctors are surrounding when you need.

At that time we can lost our focus for your rehabilitation. Listen their advice and focus. Of course we want to go home but we have to take their advice. Surely you miss home food instead of hospital food.

After you reach home, the real life begin.
You are already lost everything that you use to do. At that time the depression may kick in. You have to be strong and concentrate your rehab. No need to be rush and keep cool yourself because you are upset. At that time your family need you to be alive and fight together with you for staying together. You may not think in this way but remember that your family love you.

Adapting stage
You may be easier to accept what you are right now because of you already are . But your parent can’t be able to accept because they watching you growing as a normal person. You will clash with your parent and family member due to their sadness of your condition. It’s take longer time to adept each other.

First day go out
You will feel like shame on yourself. But its not true that peoples are looking down on us. Actually they are trying to help you and count you as same person. Don’t refuse to talk to them you may find enjoying to talking to them.

Public place
Don’t be surprise that your destination are not accessible. There is always away to reach. If possible , check before you go or call. When people approach you to help , don’t refuse them. It may hurt them on their kindness. Don’t be shy to request for a help when you in need. There is always be around.

Daily life
Even to eat your meal is difficult for you but try to learn how to eat by yourself again. It will be much nicer taste than other people feed you. Don’t be shy while you are eating at public. Some people even can not come out to public. You are blessed that you can enjoy the public .
Check your body regularly for your skin. Especially shower time , no need to be shy that people shower for you and ask wherever place need to be clean. That’s the only time that we can wash our body.

Bowel management
You have to control your diet to maintain your faeces. If possible , eat more fibber food and drink more water. Some people my use IDC , SPC or IUC, depending on your choice. So that you can control your fluid intake.
Shower and bowel are most challenging for you and your care giver. You have to appreciate them for their kindness. It is a challenging job for care giver as well. Due to a daily job for them , you have to appreciate them. Think as yourself that you are doing for the other.

Sport
There are so many sports are still available for Tetraplegia. Try to contact to the sport council or friends to find out more about what you are interested. (wheelchair racing , wheelchair rugby, table tannic , Hand cycling and many more…) Sport will always make you happy and reduce your urine infection , improve your ability and more connection.

Job
You will not get the job so easily because of your disability. At that time don’t be upset that you don’t get a job. When you are finding the job, you will get the job one day. Keep faith on yourself that you can perform. Job may come and go , but the important thing is don’t give up hope. Something is always there for you.

Religion
Sometimes religion is helpful to guide us. Every religion is good and teach us to behave well and self control. When you trust more on God you will believe more on yourself. Gentle is best weapon all the time.

Appreciation
Say thank you for every single help that you received. It will be more joyful for everyone.

To be continue………..

Nice to meet you guys.
Please follow me @patricksanlin and upvote. Thanks