Special Needs - What is FoxG1? What is Life With Luke?

in #life7 years ago

What is FoxG1? That was phrased as a question still because we are still learning. Luke has been UNIQUE his whole life. He has had many labels. The schools and doctors have never known what to "call him". Is he Mentally Retarded (MR)? Is he Austistic? Nobody really knows because Luke does not fit the text book definition of anything. A year or so ago we had some genetic testing done. It turns out that there is a gene identified as FoxG1. When there are problems with that gene they show up as special needs. We were excited to get a "reason", a diagnosis. True to Luke's fashion he doesn't quite fit the mold of the typical FoxG1 kid. We took a trip to the Texas Children's Hospital in Houston to see if we can get some answers. Although we left with few solid answers it was nice to get another perspective from a well respected doctor that specializes in this type of thing.

For now... we don't know what exactly is challenging Luke, but we do know that we love him. Luke is truly a wonderful special person.

This video is the first of a series of videos meant to document what it is like to live Life With Luke!

Sort:  

Luke is indeed a very special young man. He is willing to work in the garden doing what is needed, and he is great with the livestock. Good Job Luke.

Congratulations @daddykirbs! You have completed some achievement on Steemit and have been rewarded with new badge(s) :

Award for the number of posts published

Click on any badge to view your own Board of Honnor on SteemitBoard.
For more information about SteemitBoard, click here

If you no longer want to receive notifications, reply to this comment with the word STOP

If you want to support the SteemitBoard project, your upvote for this notification is welcome!

Congratulations @daddykirbs! You have completed some achievement on Steemit and have been rewarded with new badge(s) :

You got your First payout

Click on any badge to view your own Board of Honnor on SteemitBoard.
For more information about SteemitBoard, click here

If you no longer want to receive notifications, reply to this comment with the word STOP

If you want to support the SteemitBoard project, your upvote for this notification is welcome!

Congratulations @daddykirbs! You have completed some achievement on Steemit and have been rewarded with new badge(s) :

You published 4 posts in one day

Click on any badge to view your own Board of Honnor on SteemitBoard.
For more information about SteemitBoard, click here

If you no longer want to receive notifications, reply to this comment with the word STOP

If you want to support the SteemitBoard project, your upvote for this notification is welcome!

Coin Marketplace

STEEM 0.16
TRX 0.15
JST 0.028
BTC 59220.04
ETH 2316.03
USDT 1.00
SBD 2.51