"And then it all came crumbling down..."

Some time ago I was browsing Reddit and I came upon this question: "What's the title of the current chapter of your life?". First thing that popped into mind was the title of this post...

Wow, that got me thinking for a while. I mean, it could be worse, but that just sounds really depressing.

To be honest, a lot of things are going on in my life right now. In August last year we got some really bad news regarding the health of our youngest son. It's not like it's life-threatening, but he'll need intensive mental coaching and regular physical check-ups during the rest of his life. He's three years old at the moment, so we've got a long road ahead of us.

Almost three years went by, my son waking up 8 - 12 times a night, EVERY night, before we found out the real reason why this was happening. Three years of seemingly unrelated illnesses and physical discomfort. Three years of pleading to doctors to please consider writing a referral to have this sorted out. Three years before FINALLY meeting this pediatrician who knew what was going on, the first time she saw my son. The same woman that saved my other son's life over 6 years earlier.

Genetic testing confirmed:

"... he has 22q11.2 deletion syndrome."

I'd never heard of it, but that hit me like a freight train. I didn't dispute the test results; It explains all the, for all we knew were unrelated, symptoms he has. It also makes it possible to get proper care and "treatment". Still it felt like someone close to me just died.

Whatever happens though, I love the little guy to death. He's really sweet and I can see he's doing whatever he can to learn new things and keep up with whatever gets thrown at him. Less than four years into this world, he's already so much stronger than I will ever be!

Check out my next post if you care to know what 22q11 deletion syndrome is, and why I think more (all) people should know about it's existence.

If you got this far, thanks for reading through! Please bear with me as this is my first real blogpost on Steemit and I probably need some time to adjust ;) I'd love to read your comments and/or critique, or just if you can relate or find yourself in a similar situation.

Brgds and Steem on!