I wouldn't think for a moment that the doctor doesn't want your case. You are probably a high profile case with the disease being so rare that she will be famous. I should think you could possibly use this to your advantage somehow by threatening to go elsewhere. Don't be afraid to let your needs be known and expect nothing less that the best care. That is the least you can expect, but I should think they would go over and above for you. You shouldn't take any NSAIDS with kidney problems. You could go into kidney failure taking those. Best case over the counter would be Tylenol but no more than 4000 milligrams a day as long as your liver is normal.