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RE: Daily Dose of Sultnpapper 08/13/18> I remember it like it was yesterday…08/13/04.
That's a very sad story, though good that she passed peacefully and with her family around her. I've never heard of EDS. And I've never heard of a heart being round the wrong way. She must have been a strong woman to get through life with those ailments.
She was one tough cookie and raised up on the farm so she knew about working in the fields and taking care of the animals. She never was diagnosed with EDS, but she had several of the symptoms, my wife and kids have been diagnosed and are part of an ongoing study at the Baylor College of Medicine. There is no question in our minds though when you look at the extended families and who has symptoms and who doesn't that it came from her side of the family, none of my wife's aunts or uncles or cousins from her dad's side of the family have any signs of it.
Goodness. It must be very worrying for you, but it's great that they are helping with research into the condition.
It is because we never really know what to expect or when things may start turning downward. We stand to gain from any research so why not be a part of it is our thinking on that.