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RE: Daily Dose of Sultnpapper 08/13/18> I remember it like it was yesterday…08/13/04.
Gosh mr Papper, so it can be a real debilitating condition, Shorty's description is very good!
I checked now and saw there's an EDS Society as well.
Really hope your family do not have severe complications as a result; would be good to hear about this condition from mrs Papper's point of view!
There certainly is an EDS Society and it is a good source of information. It seems like it is a progressive type of condition that gets worse over time. My wife had the same symptoms as a child as the kids do but back when she was a kid people would always accuse her of "faking" that she was ill to get out of doing stuff and going to school.
Her pediatrician and then family doctors new something was wrong but could never put a handle on it. It has a long history dating way back but because it affected so few people it was not widely know and not heavily pursued in terms of research. Things have changed and there is more and more research being done but no cure has been discovered so it mainly revolves right now on symptom / pain management .
I gave seen with my own eyes though that it is getting progressively worse with my wife in the 26 years since we met. So when she says the the kids are going through the exact same things that she did as a child that is scary on what they have to look forward too unless something changes.
That must be a huge concern for both of you, especially Mrs Papper as she knows exactly what it feeks like! Gosh, and then I complain about a little hayfever!
It surely is.