The new beginning

in #blog • 8 years ago

Day in day out story of my unusual life which is not easy at all.

On my (let’s say) blog I will try to bring You some news from my routine.

My name is Jacob. I’m 18. I’ve been cursed with my disease Spinal Muscular Atrophy. Last year had given a small light in the narrow tunnel. Spinraza has been approved to use for all types of SMA. Unfortunately we hadn’t expected that it’ll cost 1 million $. I will appreciate your support. :)

#daily #routine #disease #curse
8 years ago in #blog by
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