I am not in the same situation except in one sense: I am a parent. Like you, I spend most of my physical and emotional resources investing in a future I cannot know.
I am also an occupational therapist, and have been for long enough to know teens and young adults who were once toddlers in my care.

Maybe that's why I don't have the same blissful ignorance as most parents of "neurotypical" kids. I've seen quite a few examples of lives that aren't going the way people expected. Will my child grow up strong and healthy? Or will he succumb to accident, illness, addiction..? I can't know, and in fact can't possibly help the outcome by worrying. Parenting is terrifyingly beautiful.

I'm writing a lot on your post, and not sure if it's helpful. It's just that your story and others like yours are precisely the reason I began blogging (initially not on Steemit). There's just so much more to raising kids with special needs than we get to cover in an OT session (or 20).

I live in the US so cannot help with local resources, but I'm happy to talk with you about strategies or just listen when you need to talk.