RE: Tales of an Exhausted Autism Mom: Part One-The Bus Dream
When I took Dre to the peditrician with his 11 month older brother, they gave me a paper to fill out for Autism. Snow passed it, but I also did it for Dre. I had suspicions then and he was 2; he failed it. I told the peditrician when he came into the room and he laughed and said those test give more false positives then real ones, just ignore it. He explained that since Dre was playing with his shirt while he was talking to me, he in no way could have Autism. I changed doctors a year later, when he told me my son's speech delay was my fault for spoiling him and being an anxious parent. If I would just learn to relax he would start talking.
When I moved doctors and started asking other doctors outside of peditricians, I found that there are only certain doctors, in our state, who can diagnose Autism, not peditrician. The peditricians in our state are not trained for it. That is why they give the test in our state so if they don't pass it, the pedtircian is to refer them to the specialist for a diagnosis. Needless to say his diagnosis has taken 2 years due to an incompetent doctor.
That is why I want to blog our journey because through talking to people and reading others stories online, I am learning we are not rare. I also want to help people understand that not all Autistic children are the same. My meaning is, when the specialist called to schedule his final appointment for his diagnosis, she asked if I would need help holding him or need help during his tantrums. I said no, he is a very calm child and really laid back. She was like oh, um ok. It was though she did not understand.
Dre is in speech therapy and he does well and I have found that this is a challenge also. Finding the right people who are there to give the best care and not just for the paycheck. She is our second one, the first just blew bubbles and talked to me about her life. We have also found that he does better on a slower schedule with her. Instead of twice a week, we are now going once a week. He talks more and engages more when he doesn't go. When he does go he punishes us by not talking for a day. It is all a learning game :)