Fibromyalgia~ A Day in my Life

Hi Everyone,
*updated post just now. Please see below.

Here is a proper post to go with this video.
Eight years ago now, I lost my job as I had become very ill. The Doctors found one thing wrong with me but this new disease should not have caused all the problems I was having.
Many people thought if I just put makeup on I would get better. Yes, some people think makeup is the answer to everything. While I find on a really depressing day it can help lighten your mood so you don't scare the crap out of yourself every time you walk in front of a mirror, I don't think it's the answer to all of life's problems. loll
So years of Doctor visits, losing the job that I had wanted my whole life, people thinking I was insane all played a toll on my head.
It took 5 years for a Doctor to finally listen and diagnose me with Fibromyalgia.
Living with chronic pain with such an unseeable, untouchable disease makes it hard for people to put their minds around it and see that you really are suffering every day.
You also get tired of having to explain that you know you are not crazy! or Lazy! or all those other nice words people think about you and call you behind your back.
So you end up doing a lot of soul searching to make it through your days. You learn how to dig very deep to just survive each day.
This video, I made this morning, was very hard for me to read out loud. Looking at how my life has changed is a hard thing to do when it's right in your face as it was when I saw myself reading back a typical day in my life.
So while most of this video is not funny it does show that everyone goes through their own trials every day. That what you think of a person, whether it be good or bad, is only a small part of their story.
I don't like to think of myself as handicapped but in most things I am. I don't think though this defines who I am.
I am and always will be that little girl that wanted to see that bull just now I have to remember to do everything much slower. 😁
So why did I post something that makes me uncomfortable? as I hate people feeling sorry for me. I did it to show that though life cannot be fair at what get's thrown your way, there is a way to always find Hope every day.
With Hope, you can always go on. Hope is a powerful thing.
Thank you for taking the time to read and watch!
Much Love,
Snook

Original post below:
This is a glimpse into my life.
Living with chronic pain is not easy but it can be done!
This was not easy for me to read but after a conversation I had with a very good friend late last night I thought it was something that needed to be shared.
Here is a link to learn more about Fibromyalgia if you care to. Mayo Clinic
Much Love!
Snook


hope shall not let us down. life is certainly full of challenges and those who brave it will become wiser and more stronger at heart. Stay blessed
Thank you <3 I could not live without hope!! and thank you for stopping to read :D and I'm so happy your story got seen today!!!
Have you been talking with @karenb54 ?
she is another sufferer, you might be able to swap stories, what helps etc.
no, as I did not know her :D but now she is on follow!! Thank You @len.george!!
anything to help, hinder, or otherwise.
I had no idea @snook. Thank you for sharing this. If you ever want to talk, just direct message me in discord. Have you ever looked into alternative treatments?
Sharing this was not easy for you. (It's just more proof that you are still a badass Snook!) I'm sad you have to go through this pain every single day. I am very happy though, that you have your gaming and that you have all of your friends here on Steemit. You and your husband are so good for each other! Of course, he who gets cookies makes out a little better in the deal. ;) hugs
You know where to find me if you ever need or want. Even if you just need to swear. Well, especially if you want to swear (because I like sweary Snook). And always of course if you need a laugh or someone to talk with.
Love,
PaperBag Head
No it wasn't ......... and Thank You :D so much for being who you are :D and I promise if I need to swear I will come find you LOLLL
I love you! I am proud of you, who you are and for being so strong. I look up to you in so many ways! Please know you are amazing. Amazing!
Thank You <3 I love you too <3
Awesome video! Love you! And your hair and make-up looks very pretty :D
Thanks :D it was a quick makeup day just so I didn't scare anyone away loll
Love You too !!!! :D <3
I feel ya on this. I was diagnosed with fibro and CFS just over a year ago, after YEARS of suffering. I had to give my job up because of it.
Anyway, after trying all the meds, I found that the ketogenic diet helped with the pain -- like about 80%. Have a google on it. Good luck. Thanks for sharing :)
Thank YOU!! I will look into it!!! :D
and thanks so much for stopping!
You're welcome. Heads up though -- the first week on keto takes a bit of adjusting lol :p