RE: Dear Diary: I Could Not Eat Much Today Because Of My Breathlessness As Foods Really Are Toxic For Dialysis Patients
What kind of dialysis are you on? HemoDialysis or Peritoneal Dialysis? I suspect you are doing Hemo and so then I start thinking your breathlessness may be happening because they are under dialysing you. Not taking enough water out of your system. How many times a week do you get dialysed?
You may need to be dialysed at a higher number of liters. My friend Myrna was being dialyzed at 4 liters. She moved to a different state and they changed that to 2 liters and she had a problem with breathlessness. They took out less water. That turned into congestive heart failure. Water puts pressure on the heart and lungs as well as other organs in the body, pressurizing them. Dialysis changes all that if you are being dialysed deep enough.
Myrna changed over to Peritoneal Dialysis (PD) and did her treatments at night while she slept. PD is much easier on the body. PD does not destroy Red Blood Cells. With PD you are able to keep your fluid levels at a more consistent level. With PD you don't have problems with Low Blood Pressure and Passing Out because you are able to keep your fluid levels at a more consistent level.
Want to talk more about ESRD with me?
We tried to take more water from my body but I get hypotensioned @drbill
I can't take much water unlike before because my backbone deformity had pressed my organs including my lungs so I can't load up much on water and I get breathless so easily.
This is why I suggest Peritoneal Dialysis you do every night while you sleep. It is a lot less damaging to the body. The dialysis is done first by choosing the level of the dialysing. There are 4 strength solutions you can use. 1) yellow is the weakest and takes out the least amount of water. 2) Green is the next highest and takes out more water. 3) RED is pretty heavy and finally 4) PURPLE is full strength and takes out the most water.
I believe you will be using the Yellow solution to not take out so much water and the toxic parts will be dialyzed out to an acceptable level.
Going by your blood pressure you can decide what strength to use. This system is done while you sleep and you control the amount of water to take out. The Toxic parts are removed during the 8 hour process. You don't become light headed and faint, your red blood cells are left intact so unless another problem comes up you don't need blood transfusions.
The process is based on Osmosis. Talk to your Renal Doctor or dialysis unit about it they can tell you all about it and show you the equipment. You don't buy the equipment it is part of your prescription basically on loan to you. It gets replaced if it breaks down.
Believe me it is the next best thing to having a transplant, you will live longer and feel better everyday while you are waiting for a kidney. Really is an amazing process and rather easy to learn and do. Try it you'll like it I Promise.
Also, if you get really fired up about PD then here is another little known fact...The machine can be powered by a single 100 Watt Solar Panel and 2 deep cycle batteries. If you get full sun for 10 hours a day or there about you will have enough power to run the system that only uses 450 Watts all night long. I know. I did that too for Myrna.
Thank you @drbill for your concern.
As you can see I cannot add much water into my body cavity because it will just squeeze my lungs even further because of my collapsed backbone. But I do like peritoneal dialysis if only I can move normally. I cannot even look down because my chin and my neck just had sunk down already too.