ulog#2 One day with our beautiful warrior with Patau syndrome or trisomy 13

Hello my dear stemnianos today I want to present to you this beautiful warrior that is part of our family her name is Nahomi and it is a miracle that God gives us.
Nahomi was born with a syndrome called Papuan syndrome or trisomy thirteen.

Patau syndrome or trisomy thirteen is a chromosomal abnormality in which the patient has an extra copy of chromosome thirteen. It is characterized by presenting multiple serious alterations in organs and vital systems such as:
Malformations of the nervous system, Dilation of the cerebral ventricles, failure of the division of the brain into two hemispheres during the embryonic period (holoprosencephaly), severe mental retardation, epilepsy.
Malformations in the head and neck, very small eyes (microphthalmia) or very close eyes that can even be fused into one. They can also present a slit in the iris of the eye, which is called coloboma, abdominal malformations, cardiac malformations, location of the heart on the right side of the chest instead of the left side, malformations in the extremities.

Nahomi unfortunately presents all the symptoms of this bad disease due to complications can not see has severe mental retardation is like a newborn baby only ingested liquid, convulsed several times a day and although it is given as life time maximum one year our great warrior He is already 5 years old and every day is a battle won. It is our greatest and greatest love and we thank God for having sent it to us because with it we have learned many lessons in this life. We ask God to bless her and as long as he decides, we will continue to fight with her and for her.