Something I find even more troubling is that the data is being shared between countries. Whether voluntary or through a hack. Someone, somewhere in another country has your data. Sometimes access is granted via law enforcement even though it violates the other countries laws .
https://www.thestar.com/news/gta/2013/11/29/access_to_canadian_health_files_by_us_border_agency_sparks_demands_for_inquiries.html