Zarah Angelica

in fundraising •  27 days ago  (edited)

In my 1st post here I just like to tell you all that I am working on helping out a little Girl and her Family.

Theyr little girl Zarah Angelica is fighting a daily battle for her health.
Zarah Angelica is a little girl that has been born with the Aicardi syndrome . And allso been diagnostic with many other illness.

icardi syndrome is a rare genetic malformation syndrome characterized by the partial or complete absence of a key structure in the brain called the corpus callosum, the presence of retinal abnormalities, and seizures in the form of infantile spasms. Aicardi syndrome is theorized to be caused by a defect on the X chromosome as it has thus far only been observed in girls or in boys with Klinefelter syndrome.

-West syndrome (infantile spasms)

  • Corpus Callosum Agenesi

-Biliary atresia, a condition in newborns in which the common bile duct between the liver and the small intestine is blocked or absent

The family has been in and out of hospital since Zarah was born.
There has been done a lot of treathments ;

Fenemal, Prednisolon, Keppra, Sabrilex, Topiramat og ACTH-injections.

The Family has already been told that Zarah Angelica probably would not survive the first or the second decade, and that the development will probably stop at any time. For infantile spasms, mortality is within the 3 first years of life 61%.

If you like to read more about Zarah and her life and story, and maybe allso like to give a helping hand, check out the link : (1).jpgzaraanestesi.jpg

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hope Zarah gets all the help she needs

thx a lot Howard the work is ongoing. Thx a lot