All clear and in the dark
Despite some frustrating and painful mistakes that I on't go into here but, the MRI itself didn't show up any reason as to why our daughter had seizures which, is a relief but also leaves us in the dark. If they did find something however, it would have most likely meant something serious. Thank you for all the various messages and thoughts, they were nice to read throughout the day.
My wife has been sleeping on the floor of our daughter's room by the bed since we brought her home from her hospital stay almost two weeks ago. We are both ill with a terrible flu which doesn't make matters any easier yet, we are still surviving. My wife's brother-in-law is a radiologist and he will have a look at the scans tomorrow and get a third opinion on them also. He is very careful and precise by nature, a good resource for such things.
As we drove home today, my wife said that she will stay there tonight and then will move back into our room. Her words were, "We just have to trust she will be okay". Th is what being a parent often is I guess, trust in something one has very little control over, if any. It is not really a gig that many people have adequately prepared for. I know some great parents but I sometimes wonder, "what happens if...?"
It is a terrible lie of thinking but for me, it helps me develop some understanding and prepare somewhat emotionally for the large, negative ifs. People talk about always staying positive and avoiding negative thoughts but as I have mentioned before, I see that as somewhat naive. Remaining positive and considering negative are not incompatible.
However for now, I will try not to mention illness so much in my texts, it has just been such a large part of our lives in recent times, perhaps recent decades that it is always there in mind and our lives center around it every day. Our daughter has started looking for needle marks on her arms and asking me to tickle them to make them better. If only it was so easy.
Right at this moment however, she is sound asleep and hopefully going to dream of something better than this day. My wife will be there beside her.
Taraz
[ a Steem original ]
Once again, a heartfelt thank you for all the messages of support.
Hey Taraz. Good news though. Just would be nice to find out the cause though. Is it not better to just get a monitor for her cot so you will be able to hear her. It wouldn't help me as I am rather a heavy sleeper.
I have been thinking and maybe it is another allergy. I am sure you guys have been racking your brains but it could be something simple like a latex allergy. I don't know what to say but thankful nothing was found in the scan.
We have a monitor but even on the highest sensitivity it won't help because the seizures are silent.
It could be a reaction to a medication ot interaction between two.
That makes more sense.
Stay strong, daddy. You have what it takes, no matter what happens. Be with your girl, she is love and she needs you more than ever. Hope your illness goes away too, it's difficult enough as it is for you guys..
I was up a lot of night thinking about her and for me that’s somewhat good to hear.
Side question, I know she has some reactions to food etc. did doctors ever say if that could have been like an amped up reaction to something?
She has quite a few medications so it might be that two interacted badly. We have cut out everything that isn't necessary even though she is less comfortable.
A big hug for y'all!
Thankfully nothing was found but the mystery still has to be very frustrating for you two. I hope you find your answer and best wishes to you guys.
Denial is the wrong way to go.
Negative thoughts what is that ? something that you don't want to face
There are many reasons for a child to have a seizure. In your little ones case I'm hoping on the sugar imbalance .
The MRI ruled out any major issue. That's good news. Great news and the second opinion should confirm it. (will)
The picture of your wife tells a story. (a mothers love)
Yes, it is really a relief that there isn't at least anything obviously wrong in the brain. They ruled out epilepsy also.
The mother is luck that she has so many photos of her love. The father will become a footnote in history. ;)
Its really a relief to hear you speak this way that means things will soon be in a better shape soonest, my kinds regards to your baby and wife, you are really a dad any one should be proud of @tarazkp.
I'm glad to hear that nothing bad showed up in the MRI. I hope that you and your wife (and daughter) sleep better tonight [and every night going forward]. With any luck, the worst of this all will be behind you guys!
Here's to hoping. Would be nice to get some decent sleep one year...
Even with a healthy child, you're likely asking for too much there... I'm a believer that sleep is for the people of the world who decide not to have children!
There's always something to keep you up at night when you want to give your kid(s) every advantage that you can.. while also teaching them how to become strong, kind, and wise (among others). 🙂
The results may not be completely analyzed, but at least the news is all good. I am thankful for that for Ana and for you both. A very not-convenient time for the flu! Ugh!
Well, I guess that's good news, but the unknowing is sometimes worse, isn't it? I'm like you; it gives me solace sorting out all the what if's in my mind, not necessarily focusing on the negatives, but just getting a general map in place in case. As always, sending lots of love and positive vibes to you and your family.